pmppals.net
PMP Pals is the world’s oldest, global, volunteer-run, peer-to-peer support community for patients and caregivers living with Appendix Cancer, Pseudomyxoma Peritonei (also known as PMP) and related peritoneal surface malignancies. We build emotional resilience by sharing our hope, experience, resources, and information with each other through Programs & Services that meet the challenges of this rare disease.
Through the website, every week, patients and caregivers meet through Zoom to encourage each other and talk about topics of interest like treatments, nutrition, and strategies to handle the emotional stress of the disease. Peer-to-peer support is vital to navigating successfully the unknowns and nuanced landscape of appendix cancer.
Once a quarter, we invite a leading medical specialist to present on a current topic of interest. PMP Pals moderates the meetings which are open to patients, caregivers, friends, family, and the medical community.
A searchable map helps patients find the specialists they need. The site serves for development of the not-for-profit organization.